The LeDeR programme supports local areas to review the deaths of people with learning disabilities.
What is the LeDeR programme?
The Learning Disability Mortality Review (LeDeR) Programme is delivered by the University of Bristol. It is commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England. Work on the LeDeR programme commenced in June 2015 and will continue to be run by the University of Bristol until May 2021.
A key part of the LeDeR programme is to support local areas to review the deaths of people with Learning Disabilities (deaths include from age 4 and above), helping to promote and implement the new review process, and providing support to local areas to take forward the lessons learned in the reviews in order to make improvements to service provision.
The LeDeR programme also collate and share anonymised information about the deaths of people with learning disabilities so that common themes, learning points and recommendations can be identified and taken forward into policy and practice improvements.
Core principles and values of the LeDeR programme
- LeDeR values the on-going contribution of people with learning disabilities and their families to all aspects of its work.
- LeDeR takes a holistic perspective looking at the circumstances leading to deaths of people with learning disabilities and does not prioritise any one source of information over any other.
- LeDeR aims to ensure that reviews of deaths lead to reflective learning which will result in improved health and social care service delivery.
- LeDeR’s aim is to embed learning from the reviews of deaths of people with learning disabilities into local structures to ensure their continuation.
The local LeDeR Steering Group
We have a Steering Group chaired by the Independent Registered Nurse, who is also a member of our Governing Body. The Steering Group aims to take a strategic level oversight of the reviews of deaths of people with learning disabilities, driving transformation to improve care. Meetings are held monthly.
The role of the LeDeR Steering Group is to:
- view reports of completed reviews presented by the reviewers or Local Area Contact (anonymised)
- support the identification and sharing of best practice in the review process
- monitor actions and outcomes
- respond to recommendations to improve service provision and reduce likelihood of premature deaths
- recognise and share best practice and innovation
- demonstrate the impact of changes.
The Steering Group is attended by representatives from all BNSSG health providers plus representation from the three BNSSG adult social care providers, the CQC representatives, GPs and NHSE regional LeDeR leads.
Further details on our LeDeR arrangements can be found in our LeDeR Policy Framework.Learning Disabilities Mortality Review (LeDeR) policy framework
The Learning Disabilities Mortality Review (LeDeR) is a review process for the deaths of people with learning disabilities. The purpose of this policy framework is to detail how the LeDeR programme is managed locally.